GlomCon – Privacy Policy
This Privacy Policy is edited by GlomCon, a nonprofit 501(c)(3) having its registered office at 667 Sequoia Valley Rd, Mill Valley, CA, USA and registered with the state of Pennsylvania under the number 7210162 (hereafter, the “Data Controller”).
The Data Controller offers a platform GlomCon Network – a community for patients, caregivers, an kidney disease specialists (hereafter, the “Platform”) to its users which have subscribed on the Platform and as such have a user account (hereafter, the “Users”). The Platform is available at the following url address network.glomcon.org
Data Controller uses a solution called “Hivebrite”, which enables the import and export of user lists and data, the management of content and events, the organization of emailing campaigns and opportunity research and sharing as well as the management of funds and contributions of any kind.
In this regard, the Data Controller collects and processes User’s personal data in accordance with the Privacy and Cookie policy.
The Data Controller is particularly aware and sensitive with regards to the respect of its Users privacy and personal data protection. The Data Controller commits to ensure the compliance of the processing it carries out as data controller in accordance with the Data Protection Law.
Data Protection Law is the California Consumer Privacy Act of 2018 and the EU Regulation n°2016/679 regarding data protection dated April 27, 2016 named General Data Protection Regulation or “GDPR”.
The Data Controller has put in place an appropriate privacy and cookie policy to be fully transparent on how the personal data of Users are processed within the use of the Platform and services provided.
This privacy policy is intended for the Users of the Platform of the Data Controller.
Date of last update: 2022/October/23.
- 1. COLLECTED PERSONAL DATA
1.1 When subscribing on the Platform
When subscribing to the Platform, the User is informed that its following personal data is collected for the purpose of creating a user account:
Mandatory data
- First name ;
- Last name ;
- Email address;
- Honorary title ;
- Designation as patient/caregiver or kidney disease specialist
- Areas of interest
- A set of agreements
Optional data:
- Address, biography, work position and experience
The User is informed that it is not possible to access the Platform without providing the mandatory data strictly necessary to create an account and authenticate the User.
1.2 During the use of the Platform
The User may validly publish, at its own initiative, any content on the Platform which shall be kept by the Company:
The User is aware that when using the Platform, the User may decide to provide « sensitive data » within the meaning of Data Protection Law, for example, data revealing racial or ethnic origin, political opinions, religious or philosophical beliefs, concerning sexual orientation, etc. By providing such sensitive data, the User agrees to their processing by the Platform in the conditions set forth in this Privacy Policy.
- 2. THE PURPOSE OF THE DATA PROCESSING
The Data Controller and its subcontractors process personal data that are freely transferred by the User when accessing the services proposed by the Platform for the following purpose:
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Purpose |
Legal basis |
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Creation and management of a user account; |
According to options listed in GDPR, art.6
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Providing the User with all functionalities of the Platform, meaning:
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Management of data subjects rights according to the Personal Data Legislation. Storage of User personal data;
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Management of transactions through the Platform;
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Management of delinquencies and claims |
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Making statistics in order:
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Making statistics regarding the effective use of the Platform;
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Making statistics regarding the different levels of activity on the Platform. |
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Enable the synchronization of the User’s LinkedIn profile;
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- 3. DATA RETENTION PERIOD
The Data Controller informs the User that the personal data related to the User Account is retained only during the length of the User’s subscription on the Platform.
Following the termination of said subscription, the data collected upon the subscription as well as the content published by the User on the Platform shall be deleted after a period of 7 days.
- 4. DATA TRANSFERS
The Users’ data are stored in the European Economic Area (EEA) by the Data Controlle and its trusted service providers. However, depending on the processing, the Users’ data may also be transferred in a country outside the EEA, to our trusted service providers.
When transferring data outside the EEA, the Data Controller ensures that the data are transferred in a secured manner and with respect to the Data Protection Law. When the country where the data are transferred does not have a protection comparable to that of the EU, the Data Controller uses “appropriate or suitable safeguards”.
When the service providers to whom personal data are transferred, are located in the United States, these transfers are governed by the standard data protection clauses adopted by the Commission.
- 5. COMMITMENT OF THE DATA CONTROLLER
The Data Controller commits to process User’s personal data in compliance the Data Protection Law and undertake to, notably, respect the following principles:
- Process User’s personal data lawfully, fairly, and in a transparent manner;
- Only collect and process the Users’ data for the strict purpose as described under article 2 of the present privacy policy;
- Ensure that the personal data processed are adequate, relevant and limited to what is necessary in relation to the purposes for which they are processed;
- Do the best efforts to ensure that the personal data processed are accurate and, if necessary, kept up to date and take all reasonable steps to ensure that personal data that are inaccurate, having regard to the purposes for which they are processed, are erased or rectified without delay;
- Keep personal User’s data for no longer than is necessary for the purposes for which they are processed;
- Put in place all necessary technical and organizational appropriate measures in order to ensure the security, confidentiality, integrity, availability and the resilience of the process systems and services;
- Limit the access to the Users’ data to the persons duly authorized to this effect;
- Guarantee to the Users their rights under the Data Protection Law in relation to the processing of their data and make the best efforts to satisfy any request, where this is possible.
- 6. EXERCISE OF THE USERS’ RIGHTS
The User is duly informed that it disposes at any time, depending on the legal basis of the processing, a right to access, to rectification, to erasure, to restriction of processing, to data portability, and to object.
When processing is based on User’s consent, the right to withdraw consent at any time, without affecting the lawfulness of the processing based on consent before its withdrawal.
The User can exercise its rights by sending an email to the following address
In addition, in the event the User considers that its rights have not been respected, the User of which the personal data is collected can lodge a complaint before the competent supervisory authority. For any additional information, you can review your rights on the websites of the competent authorities.
The competent supervisory authorities are listed on the following website:
http://ec.europa.eu/justice/article-29/structure/data-protection-authorities/index_en.htm.
- 7. COOKIES
The Data Controller informs the User that Hivebrite, as well as its subcontractors, uses a tracking technology on its terminal such as cookies whenever the User navigates on the Platform.
Our Website uses cookies. We use cookies to gather information about your computer for our services and to provide statistical information regarding the use of our Website. Such information will not identify you personally – it is statistical data about our visitors and their use of our Website. This statistical data does not identify any personal details whatsoever.
We may also gather information about your general Internet use by using a cookie file. Where used, these cookies are downloaded to your computer automatically. This cookie file is stored on the hard drive of your computer, as cookies contain information that is transferred to your computer’s hard drive. They help us to improve our Website, the service that we provide to you and the way we communicate to you.
All computers have the ability to decline cookies. This can be done by activating the setting on your browser which enables you to decline the cookies. Please note that should you choose to decline cookies, you may be unable to access particular parts of our Website.
This website uses cookies. We use cookies to personalise content and ads, to provide social media features and to analyse our traffic. We also share information about your use of our site with our social media, advertising and analytics partners who may combine it with other information that you’ve provided to them or that they’ve collected from your use of their services.
Cookies are small text files that can be used by websites to make a user's experience more efficient.
The law states that we can store cookies on your device if they are strictly necessary for the operation of this site. For all other types of cookies we need your permission.
This site uses different types of cookies. Some cookies are placed by third party services that appear on our pages.
You can at any time change or withdraw your consent from the Cookie Declaration on our website.
Learn more about who we are, how you can contact us and how we process personal data in our Privacy Policy.
Please state your consent ID and date when you contact us regarding your consent.
Your consent applies to the following domains: network.glomcon.org
- 8. RECIPIENT AND PERSONS AUTHORIZED TO ACCESS THE USERS’ DATA
Only authorized persons working for the Data Controller and, in some cases, its service providers, can access your personal data. The Data Controller makes its best effort to ensure that these groups of people remain as small as possible and maintain the confidentiality and security of User’s personal data.
The Data Controller also uses trusted service providers to carry out a set of operations on his behalf for hosting and payment services. The Data Controller can also use service providers in the tech industry, editors of specific tools integrated in the Platform for technical purposes.
The Data Controller only provides service providers with the information they need to perform the service and ask them not to use your personal data for any other purpose. The Data Controller does his best to ensure that all these trusted service providers only process the personal data on our documented instructions and provide sufficient guarantees, in particular in terms of confidentiality, expert knowledge, reliability and resources, to implement technical and organizational measures which will meet the requirements of the applicable legislation, including for the security of processing.
The Data Controller may be required to disclose or share your personal data to comply with a legal obligation, or to enforce or apply our terms of use/sale or any other conditions you have accepted; or to protect the rights, safety or property of GlomCon, its customers or employees.
List of the main service providers:
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Service Provider |
Service |
You can consult the privacy policy by clicking on the following link: |
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KIT UNITED
44 rue la fayette 75009 Paris France |
HIVEBRITE solution
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https://hivebrite.com/privacy-policy
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Stripe
510 Townsend Street San Francisco CA 94103, USA
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Payment Service
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https://stripe.com/fr/privacy
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Paypal
21 rue Banque 75002 Paris France
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Payment Service |
https://www.paypal.com/us/webapps/mpp/ua/privacy-full
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Google Cloud Platform Gordon House, 4 Barrow St, Dublin, Ireland |
Hosting of all data and content produced / provided by the User, as well as images, profile pictures and backups |
https://cloud.google.com/security/privacy/
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Amazon AWS 38 avenue John F. Kennedy, L-1855, Luxembourg |
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Sentry 132 Hawthorne Street San Francisco, CA 94107 USA
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Production and storage of error logs enabling our developers to correct the code |
https://sentry.io/privacy/ |
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Sendgrid 375 Beale Street, Suite 300, San Francisco, CA 94105 USA |
Sending of emails from the Platform |
https://api.sendgrid.com/privacy.html |
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Hivebrite, Inc. 16 Nassau St, New York, NY 10038, USA |
Customer support for the Platform |
https://hivebrite.com/privacy-policy
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Our Website uses cookies. We use cookies to gather information about your computer for our services and to provide statistical information regarding the use of our Website. Such information will not identify you personally – it is statistical data about our visitors and their use of our Website. This statistical data does not identify any personal details whatsoever.
We may also gather information about your general Internet use by using a cookie file. Where used, these cookies are downloaded to your computer automatically. This cookie file is stored on the hard drive of your computer, as cookies contain information that is transferred to your computer’s hard drive. They help us to improve our Website, the service that we provide to you and the way we communicate to you.
All computers have the ability to decline cookies. This can be done by activating the setting on your browser which enables you to decline the cookies. Please note that should you choose to decline cookies, you may be unable to access particular parts of our Website.
This website uses cookies. We use cookies to personalise content and ads, to provide social media features and to analyse our traffic. We also share information about your use of our site with our social media, advertising and analytics partners who may combine it with other information that you’ve provided to them or that they’ve collected from your use of their services.
Cookies are small text files that can be used by websites to make a user's experience more efficient.
The law states that we can store cookies on your device if they are strictly necessary for the operation of this site. For all other types of cookies we need your permission.
This site uses different types of cookies. Some cookies are placed by third party services that appear on our pages.
You can at any time change or withdraw your consent from the Cookie Declaration on our website.
Learn more about who we are, how you can contact us and how we process personal data in our Privacy Policy.
Please state your consent ID and date when you contact us regarding your consent.
Your consent applies to the following domains: hivebrite.com